Tag Archives: Celiacs

Disability Awareness

Disability Awareness time

Are you aware that I am a disabled author? If not, now you are!  My health is why I am an author and not an FBI criminal behavior analysts, or retired by now. My first book was the Fine Print of Fibro, and though now out of date, I did put a lot of info in there and even correctly theorized on the evidence of Fibro at a molecular level (since been confirmed as a genetic neurological condition found in mitochondria of our mRNA). My health is also why it takes forever to get books out and why From Dark had a poor launch.

My story is very long and arduous but I can give a rundown of some of the diagnoses and issues. Feel free to ask me any questions in the comments or through a message about any of them or anything related to them.

-fibromyalgia
-multiple sclerosis
-dequarvains
-celiac disease
-plantar faciitis
-peripheral neuropathy
-chronic migraines
-insomnia
-phantomsia
-osteomylitis diskitis resulted in severe damage to L1-L4
-i did have a right ventricular embolism that damaged my heart
-GERD and other GI issues resulting in many surgeries and procedures and has caused many other health issues
-dysphagia
-allodynia
-sensory issues such as photosensitivity, over active olfactory and taste senses and severe sensitivity to the sun
-temperature regulation issues (I can basically be okay in 65f to 70f)
-allergic to more crap every year including issues with my own sweat now
-ovarian cysts for 2 decades until they were finally removed last year when a cyst the size of a nerf football was found on a scan for GI stuff but due to scar tissue from another surgery, they had to cut me sternum to pelvis and Crack me open like a live autopsy…..healing is still an issue and the pain and discomfort is awful even a year later
-major surgery after birth of son when the military ripped him out and ripped all my lower organs out of place. They had to remove my shredded uterus and part of my colon and rebuild my colon and vaginas cavity with part of my leg and resting my bladder
-Intersitial Cysitis (my bladder is nearly allergic to my urine)
-hydradentis suppurativa
-severe vertigo
-POTS
-iron deficient anemia with iron intolerance
-nonalcoholic fatty liver disease
And then the lovely OCD (diagnosed), social anxiety, depression and so forth.

There are probably some I am forgetting. But anyways, it sucks. I wake up, live, and try to go to sleep in pain every day, all day long. I always have a headache, minor to severe. I suffer from terrible damage to my teeth due to years of vomiting from GI issues and months on PICC lines delivery antibiotics to my heart. That plus the stomach surgeries and scarring of my esophagus makes eating very painful and often causes choking and coughing and issues. I love food but eating sucks and i have a limited diet. Going to the bathroom sucks. Walking is very painful, standing is very painful and my Swiss cheese looking lumbar with schmorl  nodes and holes and pinched or missing cartlidge causes severe pain and weakness which leads to a lot of falls. My hips, knees and legs randomly give out. My hands randomly turn into painful claws. I get rashes from heat and sweat and so many other things. Autoimmune issues, constantly sick and catching everything. So many hospital trips.

Anyways, that’s the basics and the simplest breakdown. So woohoo, Awareness and all. I have a dark sense of humor about it but it is my coping mechanism.

The Fine Print of Pain is available where all my other books are and I do have signed copies available.

Hugs and love to all of my readers and supporters!
The Fine Print of Pain