Disability Awareness time
Are you aware that I am a disabled author? If not, now you are! My health is why I am an author and not an FBI criminal behavior analysts, or retired by now. My first book was the Fine Print of Fibro, and though now out of date, I did put a lot of info in there and even correctly theorized on the evidence of Fibro at a molecular level (since been confirmed as a genetic neurological condition found in mitochondria of our mRNA). My health is also why it takes forever to get books out and why From Dark had a poor launch.
My story is very long and arduous but I can give a rundown of some of the diagnoses and issues. Feel free to ask me any questions in the comments or through a message about any of them or anything related to them.
-fibromyalgia
-multiple sclerosis
-dequarvains
-celiac disease
-plantar faciitis
-peripheral neuropathy
-chronic migraines
-insomnia
-phantomsia
-osteomylitis diskitis resulted in severe damage to L1-L4
-i did have a right ventricular embolism that damaged my heart
-GERD and other GI issues resulting in many surgeries and procedures and has caused many other health issues
-dysphagia
-allodynia
-sensory issues such as photosensitivity, over active olfactory and taste senses and severe sensitivity to the sun
-temperature regulation issues (I can basically be okay in 65f to 70f)
-allergic to more crap every year including issues with my own sweat now
-ovarian cysts for 2 decades until they were finally removed last year when a cyst the size of a nerf football was found on a scan for GI stuff but due to scar tissue from another surgery, they had to cut me sternum to pelvis and Crack me open like a live autopsy…..healing is still an issue and the pain and discomfort is awful even a year later
-major surgery after birth of son when the military ripped him out and ripped all my lower organs out of place. They had to remove my shredded uterus and part of my colon and rebuild my colon and vaginas cavity with part of my leg and resting my bladder
-Intersitial Cysitis (my bladder is nearly allergic to my urine)
-hydradentis suppurativa
-severe vertigo
-POTS
-iron deficient anemia with iron intolerance
-nonalcoholic fatty liver disease
And then the lovely OCD (diagnosed), social anxiety, depression and so forth.
There are probably some I am forgetting. But anyways, it sucks. I wake up, live, and try to go to sleep in pain every day, all day long. I always have a headache, minor to severe. I suffer from terrible damage to my teeth due to years of vomiting from GI issues and months on PICC lines delivery antibiotics to my heart. That plus the stomach surgeries and scarring of my esophagus makes eating very painful and often causes choking and coughing and issues. I love food but eating sucks and i have a limited diet. Going to the bathroom sucks. Walking is very painful, standing is very painful and my Swiss cheese looking lumbar with schmorl nodes and holes and pinched or missing cartlidge causes severe pain and weakness which leads to a lot of falls. My hips, knees and legs randomly give out. My hands randomly turn into painful claws. I get rashes from heat and sweat and so many other things. Autoimmune issues, constantly sick and catching everything. So many hospital trips.
Anyways, that’s the basics and the simplest breakdown. So woohoo, Awareness and all. I have a dark sense of humor about it but it is my coping mechanism.
The Fine Print of Pain is available where all my other books are and I do have signed copies available.
Hugs and love to all of my readers and supporters!
The Fine Print of Pain
Tag Archives: The Fine Print of Fibro
Free for a limited time: All E-books
Currently, from Jun 28th – Jul 2, all of my books are free to download on Kindle (which can also be downloaded to any device for free).
Click the image of the book to be taken to the Amazon page.
Sever the Circle:
Shadows Through the Fog:
The Fine Print of Fibro:
A Wonderful Letter about The Fine Print of Fibro
A blogger and fellow pain warrior recently read The Fine Print of Fibro and promised me some honest feedback on the book. When she got back to me, the woman put me in tears! I have been having a difficult time lately with my health and not being able to write as I lay on the couch sick and in pain. My writing is slow going and I am just so exhausted. Reading her words filled me with so much hope and love. I am so happy that the book comes off exactly as I hoped it would. Even as I move on into fiction, where my imagination roams wild, it gives me great confidence that my first book published does as I intended for it to; it tells others my story and that they are not alone. Thank you so much!
Her statement is below and if you get a chance, check out her Facebook blog page. The woman is amazing at blending the darkside of living with such awful conditions with the humor we tend to use to get through it all. She’s honest, smart, and really a great person to get to know. Thank you so much, dear!
Click the link below to check out her Facebook page!
“Wow! This book had everything. From what is Fibromyalgia through to a comprehensive guide of meds and their overall effects, as well as available treatments on offer. Insurance and Disability made for a depressing read, but rightly points out the problems in applying for both. Having no idea how the health system works in the US, I found this section really interesting, especially in comparison to how things are done in the UK. The depressing part comes from realizing just how difficult it is get help and support and the many components needed to attain both those things.
Your personal story was heartbreaking and brutally honest. The bad doc stories made me so angry and clearly highlights the negative realities that patients are put through because of a lack of understanding and care by some in the medical profession. But this was beautifully balanced out with stories of the positive care and treatment that you received.
I love the straightforward bluntness of the writing. Most books on fibro are written in a stark, clinical way and find themselves bogged down with medical jargon which can be quite off putting. The way in which this is written is more personal and speaks directly to the reader. It’s also relatable, passionate and heartfelt and above all, honest.
But this is so much more than a book on fibro. It also encapsulates everything from the way in which this illness affects our day to day life, to how outside influences from friends and family can also have an effect. But most important of all, it lets the reader know that they are not alone.
Seriously, it’s a great book and I’m glad I got the chance to read it. To be honest, I thought it was going to be a daunting read, but I really enjoyed it. Everything that anyone has ever mentioned about their fibro, is in this book. It should be a must-read for those with and without the condition.”
Amanda Leanne 